Individuals intellectual and developmental disabilities (IDD) represent a diverse group of people with significant personal care and medical needs, often relying on Medicaid and other federal healthcare services to survive. Changes to Medicaid could have serious implications on the lives of this population. In recent health care reform discussions, it has been proposed that children with disabilities [as defined by receiving Supplemental Security Income (SSI)] would be carved out of the per capita caps for Medicaid-funded services. This seems to be intended to protect the nation’s youngest and most vulnerable populations and ensure access to needed services.



The Center for Epidemiological Research for Individuals with Intellectual and Developmental Disabilities (CERIIDD) conducted an analysis of Ohioans with disabilities receiving Medicaid-funded services and SSI. CERIIDD examined three distinct different age categories (0-17, 18-64, 65+). Included in the analysis were if the individual received SSI and if the individual received IDD-specific Medicaid-funded services.

Results and Discussion

Almost four out of ten of all Ohioans and one out of five children with a disability receiving Medicaid-funded services are not receiving SSI (Figure 1). For young Ohioans with IDD, only one out of four children with IDD receiving IDD-specific

Medicaid-funded services also receives SSI. For the remaining three out of four children, funding for their services would not be excluded from per capita caps (Figure 2). If carving out children with disabilities receiving Medicaid-funded services and SSI was meant to provide additional protection to this population, the data shows this may be an ineffective approach. Further analysis may be needed to ensure Medicaid-funded services for children with disabilities remain protected.




Point-in-time data for July 13, 2017, provided by the Ohio Department of Medicaid.

Data Brief: Medicaid, Supplemental Security Income (SSI), and Children with Disabilities (pdf)